World Federation of Neurology (WFN)
| Date | Thursday 04 December |
| Time | 08:30 - 12:30 |
| Location | Loews Coronado Bay Resort, San Diego, USA
Room: Britannia/Cambria |
ALL ALS Consortium
| Date | Thursday 04 December |
| Time | 13:00 - 16:30 |
| Location | Loews Coronado Bay Resort, San Diego, USA
Room: Britannia/Cambria |
| Details | The ALL ALS Meeting will bring together consortium partners to review progress, share insights, and align on strategic priorities across decentralized study design, participant recruitment and retention, and harmonization with related natural history initiatives. The session will include a focused data review highlighting early trends across clinical, digital, and participant-reported measures, followed by a working discussion on prodromal study design and considerations. This meeting is designed to strengthen collaboration, streamline operational approaches, and discuss next steps in the ALL ALS program. |
ALS App Europe Initiative Meeting
| Date | Thursday 04 December |
| Time | 15:00 - 18:00 |
| Location | Loews Coronado Bay Resort, San Diego, USA
Room: Aurora |
| Details | The second satellite meeting of the ALS App Europe Initiative will bring together clinicians, researchers, and partner organizations to advance patient participation in ALS research. The program focuses on three core areas linked to the ALS App: the self-explanatory version of the ALS Functional Rating Scale (ALSFRS-R), ALS motor phenotypes, and neurofilament light chain (NfL). Participants will receive an update on the revised motor phenotype classification based on onset, propagation, and motor neuron involvement (OPM), followed by a discussion on clinical practice and patient communication regarding phenotyping. An interactive session will explore stakeholder perspectives on sharing NfL data through the ALS App. The meeting will also present country-specific features and registration pathways. This will be complemented by a discussion on the real-world use of the ALSFRS-R self-assessment across European centers and the new, self-explanatory, smartphone-adapted ALSFRS-R version. The meeting will conclude with a review of next steps and opportunities for further collaboration. |
Project MinE
| Date | Thursday 04 December |
| Time | 17:00 - 19:00 |
| Location | Loews Coronado Bay Resort, San Diego, USA
Room: Britannia/Cambria |
| Details | Project MinE is an international research initiative dedicated to identify genetic variants that contribute to the development and progression of Amyotrophic Lateral Sclerosis (ALS). We aim to establish a comprehensive, publicly accessible repository of whole genome sequencing (WGS) data from ALS patients and controls, fostering collaboration and data-sharing across the global research community. With one of the largest ALS genetic databases ever created, Project MinE stands at the forefront of global collaboration in neurodegenerative disease research. |
NEALS Member Meeting
| Date | Saturday 06 December |
| Time | 12:30 - 14:00 |
| Location | Loews Coronado Bay Resort, San Diego, USA
Room: Cambria |
| Details | The NEALS Member Meeting at the 2025 International Symposium on ALS/MND is a closed meeting for NEALS members only. The meeting will include a networking lunch, with presentations and updates on ongoing clinical trials. Primarily in-person, the meeting will also include a listen-only virtual component. |