[MND research has] gone from a cloud of uncertainty to a sort of roadmap for how we might treat and cure motor neurone disease… I think that’s happened in relatively recent years and you can see that from the meeting. The attendance numbers have gone up and more engagement from the pharmaceutical industry means we have made tremendous progress. I think the International Symposium is really part of the process, it’s the way people come together, and it’s recognised as the premier meeting in the field each year. I’ve been very grateful to be part of that.

The 31st virtual #alsmndsymp has been an amazing experience and the closest to an in-person conference that I’ve had this year.

“For me, living in an ALS body that’s increasingly isolated, I start or tend to think of my experience as somehow mine alone. The greatest personal benefit of the Symposium was to remind me of the breadth of research and global nature of what I’m experiencing personally.”