Satellite meetings

Whilst the main Symposium runs over three days, there are several satellite meetings in the days building up to the Symposium as well as during the Symposium itself.

30 November1 December2 December3 December4 December8 December

Monday 30 November

International Alliance of ALS/MND Associations - Annual Alliance Meeting

Before the Symposium, the Annual Alliance Meeting is attended by representatives of ALS/MND associations from around the world and provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organizational development and planning, regulation, advocacy, patient care, research and funding. This year’s meeting will focus on the themes of; advocacy, research and science, programming for PALS/CALS, organizational development, and looking to the future.

Date 30 November – 2 December
Time 07:00 - 11:15 AM (EST)
More information Alliance website

Tuesday 1 December

International Alliance of ALS/MND Associations - Annual Alliance Meeting

Before the Symposium, the Annual Alliance Meeting is attended by representatives of ALS/MND associations from around the world and provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organizational development and planning, regulation, advocacy, patient care, research and funding. This year’s meeting will focus on the themes of; advocacy, research and science, programming for PALS/CALS, organizational development, and looking to the future.

Date 30 November – 2 December
Time 07:00 - 11:15 AM (EST)
More information Alliance website

ALS/MND Connect

ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers. This session is live-streamed on Facebook, so people with ALS/MND from around the world can attend and ask questions online. This year's event will be chaired by the MND Association's Head of Research, Dr Nick Cole.

Time 9:15 - 11:15 AM (EST)
More information Alliance website

Wednesday 2 December

International Alliance of ALS/MND Associations - Annual Alliance Meeting

Before the Symposium, the Annual Alliance Meeting is attended by representatives of ALS/MND associations from around the world and provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organizational development and planning, regulation, advocacy, patient care, research and funding. This year’s meeting will focus on the themes of; advocacy, research and science, programming for PALS/CALS, organizational development, and looking to the future.

Date 30 November – 2 December
Time 07:00 - 11:15 AM, 18:00 - 20:00 PM (EST)
More information Alliance website

Thursday 3 December

Allied Professionals Forum (APF)

The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals, such as physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers and more, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones.

The APF presentations are on practical care strategies and assistive technology innovations for the clinical management of ALS/MND. If you are an Allied health professional, in the clinical management of ALS/MND then this is the meeting for you.

Date 3 - 4 December
Time 07:00 - 10:45 AM, 18:00 - 21:30 PM (EST)
More information Alliance website

Friday 4 December

Allied Professionals Forum (APF)

The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals, such as physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers and more, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones.

The APF presentations are on practical care strategies and assistive technology innovations for the clinical management of ALS/MND. If you are an Allied health professional, in the clinical management of ALS/MND then this is the meeting for you.

Date 3 - 4 December
Time 07:00 - 11:30 AM (EST)
More information Alliance website


Tuesday 8 December

Past, Present, Future: The Journey to Advance Innovations in ALSCytokinetics logo

All registered delegates will also have access to a one-hour symposium sponsored by Cytokinetics, which is taking place on Tuesday 8 December 2020 (1:00-2:00 PM GMT). In this event, titled “Past, Present, Future: The Journey to Advance Innovations in ALS,” the renowned faculty will take us on a journey through time as they discuss how innovation has paved the way toward even greater discoveries to come.

PROGRAM CHAIR: 
Angela Genge, MD, FRCP
Executive Director, Clinical Research Unit
The Neuro (Montreal Neurological Institute-Hospital), McGill University
Montreal, Canada

 

 

 

PROGRAM FACULTY:
Benjamin Rix Brooks, MD
Director, Carolinas Neuromuscular ALS / MDA Care Center & Professor of Neurology, University of North Carolina School of Medicine
Charlotte, USA

Ammar Al-Chalabi, PhD, FRCP, DipStat
Director, King’s MND Care and Research Centre
London, United Kingdom

Caroline Ingre, MD, PhD
Head, ALS Center at Karolinska University Hospital, Karolinska Institute,
Stockholm, Sweden

Highlights of the program include:

  • PAST: Evolution of ALS diagnostic criteria and creation of a toolkit that can be utilized in clinical trials to tailor patient identification and evaluation
  • PRESENT: The current state of genetics and biomarker research in ALS, including lessons learned from past clinical trials
  • FUTURE: A vision for precision medicine in ALS that utilizes advances in diagnostic approaches and biomarkers to classify patient subphenotypes more accurately

At the end of the program, you will have an opportunity to submit your questions during a live Q&A session moderated by Dr Angela Genge. Mark your calendars – we look forward to seeing you!

Time 13:00 - 14:00 (GMT)
Location Virtual Symposium Platform

If you would like to attend this event, please register for the International Symposium on ALS/MND.


ENCALS Satellite Meeting 2020

ENCALS (European Network to Cure ALS) is a network of ALS centres in Europe. ALS Centre membership is open to Universities/Hospitals in Europe with ALS clinical/research activity. The ENCALS satellite meeting 2020 will be held virtually on Tuesday 8 December 15:30-17:30 CET, and registration is mandatory (free of charge).

This satellite meeting is prior to the 31st International Symposium on ALS/MND on 9-11 December 2020. The goal of this satellite meeting is to discuss international collaborations, SOPs and translation of new developments to the clinic.

Time 15:30-17:30 CET (14:30-16:30 GMT)
Location Virtual
More information ENCALS website