Satellite meetings

Monday 30 November

International Alliance of ALS/MND Associations - Annual Alliance Meeting

Before the Symposium, the Annual Alliance Meeting is attended by representatives of ALS/MND associations from around the world and provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organizational development and planning, regulation, advocacy, patient care, research and funding. This year’s meeting will focus on the themes of; advocacy, research and science, programming for PALS/CALS, organizational development, and looking to the future.

Tuesday 1 December

International Alliance of ALS/MND Associations - Annual Alliance Meeting

Before the Symposium, the Annual Alliance Meeting is attended by representatives of ALS/MND associations from around the world and provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organizational development and planning, regulation, advocacy, patient care, research and funding. This year’s meeting will focus on the themes of; advocacy, research and science, programming for PALS/CALS, organizational development, and looking to the future.

ALS/MND Connect

ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers. This session is live-streamed on Facebook, so people with ALS/MND from around the world can attend and ask questions online. This year's event will be chaired by the MND Association's Head of Research, Dr Nick Cole.

Wednesday 2 December

International Alliance of ALS/MND Associations - Annual Alliance Meeting

Before the Symposium, the Annual Alliance Meeting is attended by representatives of ALS/MND associations from around the world and provide a forum for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organizational development and planning, regulation, advocacy, patient care, research and funding. This year’s meeting will focus on the themes of; advocacy, research and science, programming for PALS/CALS, organizational development, and looking to the future.

Thursday 3 December

Allied Professionals Forum (APF)

The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals, such as physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers and more, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones.

The APF presentations are on practical care strategies and assistive technology innovations for the clinical management of ALS/MND. If you are an Allied health professional, in the clinical management of ALS/MND then this is the meeting for you.

Friday 4 December

Allied Professionals Forum (APF)

The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals, such as physiotherapists, respiratory therapists, nutritionists, speech-language pathologists, social workers and more, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. The International Alliance of ALS/MND Associations will host a virtual Allied Professionals Forum spread over two days to accommodate time zones.

The APF presentations are on practical care strategies and assistive technology innovations for the clinical management of ALS/MND. If you are an Allied health professional, in the clinical management of ALS/MND then this is the meeting for you.

Tuesday 8 December

Past, Present, Future: The Journey to Advance Innovations in ALS

All registered delegates will also have access to a one-hour symposium sponsored by Cytokinetics, which is taking place on Tuesday 8 December 2020 (1:00-2:00 PM GMT). In this event, titled “Past, Present, Future: The Journey to Advance Innovations in ALS,” the renowned faculty will take us on a journey through time as they discuss how innovation has paved the way toward even greater discoveries to come.

Highlights of the program include:

• PAST: Evolution of ALS diagnostic criteria and creation of a toolkit that can be utilized in clinical trials to tailor patient identification and evaluation
• PRESENT: The current state of genetics and biomarker research in ALS, including lessons learned from past clinical trials
• FUTURE: A vision for precision medicine in ALS that utilizes advances in diagnostic approaches and biomarkers to classify patient subphenotypes more accurately

At the end of the program, you will have an opportunity to submit your questions during a live Q&A session moderated by Dr Angela Genge. Mark your calendars – we look forward to seeing you!

If you would like to attend this event, please register for the International Symposium on ALS/MND.

ENCALS Satellite Meeting 2020

ENCALS (European Network to Cure ALS) is a network of ALS centres in Europe. ALS Centre membership is open to Universities/Hospitals in Europe with ALS clinical/research activity. The ENCALS satellite meeting 2020 will be held virtually on Tuesday 8 December 15:30-17:30 CET, and registration is mandatory (free of charge).

This satellite meeting is prior to the 31st International Symposium on ALS/MND on 9-11 December 2020. The goal of this satellite meeting is to discuss international collaborations, SOPs and translation of new developments to the clinic.

Behind the Scenes: Key ALS Community Learnings from the CENTAUR Trial

Amylyx has spent the last five years designing and conducting the CENTAUR trial for patients with ALS. CENTAUR met its prespecified primary outcome and we would like to share key learnings that may benefit the ALS community and ALS trial design.

This one-hour symposium will share key learnings and how they may be applied in future ALS trials, highlighting the importance of collaboration between academia and industry and putting the patient at the center of trial design.