Whilst the main Symposium runs over three days, there are several satellite meetings in the days building up to the Symposium as well as during the Symposium itself.
International Alliance of ALS/MND Associations
The International Alliance of ALS/MND Associations organise meetings to serve the broader ALS/MND community: The Annual International Alliance Meeting, ALS/MND Connect Session
and Allied Professionals Forum.
As a result of the continuing global uncertainty caused by the COVID-19 pandemic, the International Alliance, in consultation with the MND Association, ALS Canada and ALS Quebec, has taken the very difficult decision to move this year’s International Alliance Meetings and the Allied Professionals Forum to a virtual format where we will still have the opportunity for global collaboration and be able to work towards a World Without ALS/MND.
Before the Symposium, the Annual Alliance Meeting is attended by representatives of ALS/MND associations from around the world and provides the opportunity for these associations to meet and share knowledge of supporting people living with ALS/MND. It is also an opportunity for representatives from around the world to discuss developments and planning from their organisations, patient care and funding, and the role and activities of the Alliance and its Board of Directors.
Watch the 2019 Scientific Update from the Scientific Advisory Council of the International Alliance of ALS MND Associations on YouTube here.
Every year the International Alliance of MND/ALS Associations invite the host association to organise a free ‘ALS/MND Connect‘ session (formerly called Ask the Experts), as an addendum to the Alliance meeting. It is designed specifically for people living with MND and their caregivers to attend an afternoon of presentations by neurologists and researchers, then participate in a ‘question and answer’ session afterwards. There is no need to register for the ALS/MND Connect session. It is free of charge for all attendees, whether in-person or online.
In 2019, the session was chaired by Professor Merrilee Needham (Fiona Stanley Hospital, Australia) and we heard from Professor Matthew Kiernan AM (The University of Sydney, Australia), Professor Ammar Al Chalabi (King’s MND Care and Research Centre, United Kingdom), and Professor Leonard Van den Berg (University Medical Center Utrecht, Netherlands). The session was live streamed on Facebook, so anyone from around the world could take part. Watch the 2019 Connect session on Facebook here.
On the day before the Symposium begins, the Alliance holds the Allied Professionals Forum (APF). The aim of the APF is to foster the exchange of information about good practice and to facilitate the highest standard of care for people with ALS/MND/SLA and their carers. The APF is targeted to healthcare professionals, such as physiotherapists, nutritionists, speech-language therapists and more, who specialise in ALS/MND. It is an educational and training forum that offers healthcare professionals from around the world an opportunity to share ideas about good practice in the daily care management of people living with ALS/MND. You can watch recordings from the 2019 APF here. Registration for 2020 will be available soon.